Meet-ups
Join last of Spring 2025 Meet-ups live on June 17th, 15.00-15.50 CET!
Meet-Up will be led by Asier González Guruciaga, Consultant @ GENESIS Biomed Topic: “Using the Pediatric Health Data Space (PHDS) to support clinical trials in patients with unmet needs” ✅ Register here: https://shorturl.at/EDWRH Target audience: Data controllers,...
Improving treatment for pediatric patients with hemophilia A through machine learning
Identifying the right treatment dose for patients with hemophilia is critical to avoiding adverse health outcomes and improving quality of life. However, even with current technology, this remains a challenge. To improve, more advanced models are needed to predict...
Getting your hospital ready to join PHEMS
Being part of the PHEMS Pediatric Health Data Space (PHDS) offers a range of benefits to hospitals, including benchmarking to enhance quality and efficiency, as well as enabling the use of federated networks and synthetic data to advance research. But what will it...
Sharing data in the context of the European Health Data Space: The Pediatric Health Data Space
Join PHEMS coordinator Pekka Kahri as he puts the PHEMS pediatric health data space in the context of the new European Health Data Space. He will discuss how the two initiatives take different approaches to data sharing to reach similar objectives. He will also...
Open science, OMOP analytics, and “study-a-thons” to accelerate research
In this first half of the Hackathon Awards Ceremony we hear from Dani Priet-Alhabra, Head of Health Data Sciences at Botnar Research Center and a Professor at both the University of Oxford and Erasmus MC. He talks about open science and OMOP analytics, as well as a...
Practical Uses of Anonymous Synthetic Data in Healthcare
Anonymous synthetic data plays a crucial role in healthcare research, enabling privacy-compliant data sharing while fostering innovation without compromising patient confidentiality. This meet-up will cover the role of synthetic data in the PHEMS project and the...
Clinical Use Case: Benchmarking cardiology operations via federated data networks
The final meet-up of the year puts it all together examining the development and implementation of benchmarking across four pediatric cardiac institutions. In this meet-up we'll illustrate the practical value of the PHEMS ecosystem to both clinicians and to health...
Design of the Pediatric Health Data Space
Data controllers face multiple legal, technical, and business related challenges when providing access to health data. In this meet-up we will outline how our data space design and governance approach addresses all these challenges in a scalable manner, without...
Federated Data Networks: What are they and how do they promote clinical research?
In this Meet-Up you'll dive deeper into how federated data networks operate and their role in making clinical research more productive, patient centered, and secure. Presenters: Ross Stiven, Product Manager at Aridhia, Glasgow, Scotland Bruno Robalo, Postdoctoral...
PHEMS Overview: Towards a Pediatric Health Data Space Sep 20, 2024
This introductory Meet-Up provides and overview of the PHEMS project and how we plan to revolutionize cross-border sharing of pediatric health data through the use of federated networks, the applications of machine learning, and synthetic data. Good for those new to...