Meet-Ups
The PHEMS Meet-Up series is a monthly interactive space to share information and updates about the PHEMS project. It is also a chance for us to hear from collaborators and stakeholders. Learn more and register for future Meet-Ups by following us on LinkedIn. Or you can explore past Meet-Ups below or by visiting our YouTube channel.
Young Patients Involvement in Health Data Decisions
Young patients are often left our of crucial conversations about how their health data is used, even though these decisions deeply affect their care, privacy, and trust in the healthcare system. This gap highlights the urgent need to include their voices in shaping...
Applications of Anonymous Synthetic Data in Clinical Settings
Join us for an insightful session exploring how anonymous data is leveraged in PHEMS. As data privacy and ethical considerations grow increasingly important, this meet-up focuses on practical, real-world use cases where anonymized data plays a critical role in driving...
Strategies for Success: Roundtable Discussion on Joining the PHDS
Joining the PHDS is a major step for children's hospitals seeking to share data safely, accelerate research, and improve care across border. But what does it take to prepare? The first PHEMS roundtable brought together hospitals already validating the PHEMS Playbook...
Register here for Current Meet-Up Sessions
This fall PHEMS invites you to join an exciting lineup of Meet-Ups designed to explore the latest advances in pediatric health data.
Using the Pediatric Health Data Space to support clinical trials in patients with unmet needs
The pediatric population remains under served in terms of new drug development despite supporting regulations. The PHEMS Pediatric Health Data Space (PHDS) offers potential solutions through data harmonization and a federated network. In this Meet-up Asier González...
Improving treatment for pediatric patients with hemophilia A through machine learning
Identifying the right treatment dose for patients with hemophilia is critical to avoiding adverse health outcomes and improving quality of life. However, even with current technology, this remains a challenge. To improve, more advanced models are needed to predict...
Getting your hospital ready to join PHEMS
Being part of the PHEMS Pediatric Health Data Space (PHDS) offers a range of benefits to hospitals, including benchmarking to enhance quality and efficiency, as well as enabling the use of federated networks and synthetic data to advance research. But what will it...
Sharing data in the context of the European Health Data Space: The Pediatric Health Data Space
Join PHEMS coordinator Pekka Kahri as he puts the PHEMS pediatric health data space in the context of the new European Health Data Space. He will discuss how the two initiatives take different approaches to data sharing to reach similar objectives. He will also...
Open science, OMOP analytics, and “study-a-thons” to accelerate research
In this first half of the Hackathon Awards Ceremony we hear from Dani Priet-Alhabra, Head of Health Data Sciences at Botnar Research Center and a Professor at both the University of Oxford and Erasmus MC. He talks about open science and OMOP analytics, as well as a...
Clinical Use Case: Sepsis Prediction Hackathon Awards Ceremony
Look back at Sepsis Prediction Hackathon Awards Ceremony
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