Young patients are often left our of crucial conversations about how their health data is used, even though these decisions deeply affect their care, privacy, and trust in the healthcare system. This gap highlights the urgent need to include their voices in shaping the future of health data governance.
Join us for an inspiring Meet-Up where the voices of children and adolescents take center stage. Together, we’ll dive into the hopes, concerns, and rights of young people, uncovering ways to build trust and shared understanding between young patients, families, and healthcare teams.
Speaker:
Begonya Nafría, Patient Engagement in Research Coordinator at Sant Joan de Déu Barcelona Children’s Hospital
Target audience: Young patient advisory groups, clinicians, policy makers, health system management, SMEs, researchers and innovators.
Watch Meet-Up here: